Sufjan Stevens Hospitalized with Autoimmune Disorder, Must "Learn to Walk Again"

"My doctors did all the things to keep me alive and stabilize my condition. I owe them my life."

BY Allie GregoryPublished Sep 20, 2023

Sufjan Stevens has shared an update on his condition after being hospitalized last month for a rare autoimmune disorder called Guillain-Barre Syndrome, which left him unable to walk and without feeling in his limbs. 

"I'm very excited about having new music to share, but I just wanted to let you know that one of the reasons why I haven't been able to participate in the press and promotion leading up to the release of Javelin is bc I am in the hospital," he began.

"Last month I woke up one morning and couldn't walk," Stevens continued. "My hands, arms and legs were numb and tingling and I had no strength, no feeling, no mobility. My brother drove me to the ER and after a series of tests — MRIs, EMGs, cat scans, X-rays, spinal taps (!), echo-cardiograms, etc. — the neurologists diagnosed me with an auto immune disorder called Guillian-Barre Syndrome."

The artist went on to explain that doctors have administered immuno-hemoglobin infusions, which worked to stabilize his condition, but that he still requires "intensive physical therapy/occupational therapy, strength building etc. to get my body back in shape and to learn to walk again." Most people with Guillain-Barre Syndrome learn to walk again, but this could take a year, says Stevens.

"I'm only in my second week of rehab but it is going really well and I am working really hard to get back on my feet. I'm committed to getting better, I'm in good spirits, and I'm surrounded by a really great team. I want to be well!" Stevens continued. "I'll keep you posted as I progress. Thank you for your thoughts and prayers. And a huge shout out to all the incredible caretakers of the world working night and day to help us heal. They are living saints."

See his post below. 

A post shared by Sufjan (@sufjan)

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